Amelia was undergoing her 4th pheresis this morning. She was also getting several blood products, a result of the machine and the process and her low platelets. About half way through the pheresis, she started getting a little agitated, itchy and cranky. We were right with her and started trying to comfort her. She continued to escalate and broke out very quickly in a rash as her heart rate shot up. Suddenly, our room was full of nurses and doctors watching and ordering meds. We were able to keep her calm and with the meds they gave her, she started to calm down. It took about 30-45 minutes for her heart rate to slowly come back down and another few hours to get back to normal. It also took a few hours for the rash to resolve as well. Afterward, everyone said she reacted to one of the blood products being given. Needless to say, it was a little scary for Kim and I. We both know that once you get a bunch of nurses and doctors in your room with concerned faces, that is when you get worried.
Amelia was also oozing again from the IV ports on her leg. She had a dressing change to help clean it up. She was pretty out for most of the day following the pheresis. Tomorrow, she is heading down to IR to have the IV removed and possibly some stitches to close up the access point.
We continue to seek answers for Amelia. With no answers, we do not know how to treat Amelia for now.
Blessings
The Moody Family
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