Amelia has been pretty sedated through yesterday. We started to take the sedation medicine off and she was waking up yesterday afternoon. It was great to see her awake and talking again. However, she started to bleed again from the port sit with the pheresis IV line. We doped her up last night and changed the bandage. It was quite funny to watch her. She went from very upset with the nurses to laughing the smiling at them in about 15 seconds.
We are not really seeing any results from the pheresis yet. She is on her 4th process right now (or will be after the machine is finishing being prepped). For the most part, Amelia had a good night. She had to have her bandage changed twice in the last 12 hours because she has been oozing slightly from the site.
We are still looking for answers about her platelets. The doctors are at a loss right now. Tomorrow, after we finish up the pheresis, we are going to push to hold platelet transfusions as much as possible because Kim and I fell she does not respond to the platelets and we have tried so many things, we would like to see if Amelia responds to everything we have done.
We continue to pray for understand about what is causing her platelet counts to drop and for Amelia to start to respond to the things the docs are doing.
Blessings
The Moody Family
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