The Wait

If there is anything that sucks about being on the transplant list (beside the fact that you have a problem so severe that you have to be on the transplant list) is the wait.  And waiting is what we are doing for now.  We are starting our fourth week in the hospital.  I am not sure I can say we are holding up, but you do what you have to do for your kids!!!

Amelia has been having pretty good days, so to speak.  She has her times of crankiness and fussiness, but all in all, she is doing OK.  She regularly wakes up screaming sometime between 1 and 3 am.  This is the hardest part for Kim and I.  We go to bed early every night (we try to be in bed by 8:30, most times we are by 9:30).  I am still working and have to be up at 6:00 to be to work.  So, we do the best we can to catch up on the weekends.

For now, Amelia is still doing many of the things she did at home.  She smiles and talks.  We have had some of the nurses so many times now that Amelia even smiles and talks to them too.  We have her sit up as much as we can and try to make her stand (though supported).  She does pretty good for a short time and then she gets tired and passes out again.

We continue to look for the lessons God wants to teach us in this time.  I think it is funny that many people think Christians have a crutch in Jesus.  Many people say to us that they do not know how we do it.  I think about the story of the two builders in Matthew 7:

Therefore everyone who hears these words of Mine and acts on them, may be compared to a wise man who built his house on the rock. And the rain fell, and the floods came, and the winds blew and slammed against that house; and yet it did not fall, for it had been founded on the rock. Everyone who hears these words of Mine and does not act on them, will be like a foolish man who built his house on the sand. The rain fell, and the floods came, and the winds blew and slammed against that house; and it fell—and great was its fall.

As Kim and I walk this road, we do so on the foundation of the relationship we have with Christ.  He is the rock on which we walk.  During this storm, the winds may blow and the floods may come, but we stand on the sure foundation that is Christ, knowing full well that anything that happens is because He allows it to be.  He will provide for His children, as He provides for the birds of the air.