It is official. We are being discharged tomorrow. This is great news and we can't wait to be home again!!!
We pray Amelia will thrive at home and we will not need to return until May to undo hee colostomy.
Blessings
The Moody Family
Friday, January 31, 2014
Thursday, January 30, 2014
Bone Marrow Results
We got our results today. The hematologist said everything was normal - no elevated B-Cells. This is really good news!!! This should mean we will see improvements soon. She continues to fluctuate her blood counts within the same ranges.
We are starting to get indication the docs want us to head home sooner rather than later. Kim and I are a little concerned about this with her counts being low, but the hematologist seems to think we can manage that from home and our cardiologist things if we keep her immuno-suppresent levels a little low for now to allow her white counts to come up. We will find out more tomorrow during rounds.
We are thankful tonight for the good news from the Bone Marrow results. We are praying for our discussions tomorrow with our doctors.
Blessings
The Moody Family
We are starting to get indication the docs want us to head home sooner rather than later. Kim and I are a little concerned about this with her counts being low, but the hematologist seems to think we can manage that from home and our cardiologist things if we keep her immuno-suppresent levels a little low for now to allow her white counts to come up. We will find out more tomorrow during rounds.
We are thankful tonight for the good news from the Bone Marrow results. We are praying for our discussions tomorrow with our doctors.
Blessings
The Moody Family
Wednesday, January 29, 2014
Bone Marrow Postponed...To Today
Amelia went down this morning, was back in her room less than an hour later and running around after 3 more. We should get results tomorrow. Her platelets are relatively unchanged and her white counts are up slightly today, but we still have a long way to go.
Blessings
The Moody Family
Blessings
The Moody Family
Monday, January 27, 2014
Counts Unchanged - Bone Marrow Test Tomorrow
Nothing to report, which is why we have not reported in a few days. The hematologist wants to do a Bone Marrow test again tomorrow, so she is scheduled to go down. Some of her counts that I do not understand that were high are going down (good news!!!) and her platelets are fluctuating in the ranges they have been for the last two weeks (not good or bad!!!) and her white counts are on the low end of her range and still way too low (not good and kind of heading the wrong way)!!!
We are praying for positive results from the Bone testing tomorrow. The hematologist is looking to see improvements in the counts in Amelia's bone marrow tomorrow as a result of the medicine she recieved.
Blessings
The Moody Family
We are praying for positive results from the Bone testing tomorrow. The hematologist is looking to see improvements in the counts in Amelia's bone marrow tomorrow as a result of the medicine she recieved.
Blessings
The Moody Family
Tuesday, January 21, 2014
(NG) Tube Be GONE!!!
We were able to take Amelia's NG tube out today. She has been eating extremely well!!! Enough so that the docs OKed removing her tube, so...IT IS GONE!!!
Today during rounds, we found out the only thing keeping us here is our counts!!! The numbers we need is 50 platelets and 500 ANC (part of her white blood counts). That is the good news...the bad news is today her platelets fell from 47 yesterday to 38 today and her ANC fell from 33 yesterday to 7 today!!! One of the blood medicines she is on lowers her white counts, so that is kind expected. However, tonight is the last dose of that medicine, so we hope to see improvements soon.
The other catch is the surgeon has said when her platelets come up to 50, we can reverse her colostomy, so we are going to push for that since it would be either now or in 4 -5 months.
So, we pray continue to pray for blood count improvements.
Blessings
The Moody Family
Today during rounds, we found out the only thing keeping us here is our counts!!! The numbers we need is 50 platelets and 500 ANC (part of her white blood counts). That is the good news...the bad news is today her platelets fell from 47 yesterday to 38 today and her ANC fell from 33 yesterday to 7 today!!! One of the blood medicines she is on lowers her white counts, so that is kind expected. However, tonight is the last dose of that medicine, so we hope to see improvements soon.
The other catch is the surgeon has said when her platelets come up to 50, we can reverse her colostomy, so we are going to push for that since it would be either now or in 4 -5 months.
So, we pray continue to pray for blood count improvements.
Blessings
The Moody Family
Sunday, January 19, 2014
Holding The Course
Amelia continues to maintain her levels. No improvements, but no backtracking either. It is actually really sad. Amelia has been her long enough now that she is "friends" with all the nurses. She helps all the nurses and says hello and good bye to them as well. We are happy she is no longer upset when they enter, but we have been here way to long!!!
Last night on our tour of the unit, Amelia decided to do something a little different...
That is Woody and Jessie by the way. She pulled them around the unit for a lap or two!!
The, we decided to have her pull her brother around the room too.
While Amelia's white counts remain low, Kim and I are concerned about taking her home. We continue to pray for her white counts to go up!!!
Blessings
The Moody Family
Last night on our tour of the unit, Amelia decided to do something a little different...
That is Woody and Jessie by the way. She pulled them around the unit for a lap or two!!
The, we decided to have her pull her brother around the room too.
While Amelia's white counts remain low, Kim and I are concerned about taking her home. We continue to pray for her white counts to go up!!!
Blessings
The Moody Family
Wednesday, January 15, 2014
No New News
We did not hear results from Amelia's biopsy. Amelia did have a good day. She was up walking, but is very unstable on her feet. We think she is still going through slight withdrawals because she gets a little hyper just before the next dose is due.
Our hematologist spoke with us today and said the elevated B-Cells we are finding in Amelia's bone marrow is very rare...in fact it is so rare he is only able to find 5 other documented cases. He said it is a form of PTLD, a lymphoproliferation disorder. However, the medicine she is taking helps reduce B-Cells in the body and other doctors have had success using this medicine to treat this condition.
Since we did not hear about the biopsy, we are still praying for no rejection. We also pray the meds she is on works to bring her B-Cell levels back down.
Blessings
The Moody Family
Our hematologist spoke with us today and said the elevated B-Cells we are finding in Amelia's bone marrow is very rare...in fact it is so rare he is only able to find 5 other documented cases. He said it is a form of PTLD, a lymphoproliferation disorder. However, the medicine she is taking helps reduce B-Cells in the body and other doctors have had success using this medicine to treat this condition.
Since we did not hear about the biopsy, we are still praying for no rejection. We also pray the meds she is on works to bring her B-Cell levels back down.
Blessings
The Moody Family
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